(Ryan-age 3)
My firstborn will be 15 years old in a little over 2 weeks!
FIFTEEN!!! He will be considered an adult in a little over 3 years from now! This has been an interesting time for us all. We are learning continually. Not only is this our first child to reach adulthood. But, we are also faced with challenges of his disease. Letting him go and become independant has been extremely challenging. How do we let him go when he's still so incredibly
dependant on us? Ryan lacks ability to do most any daily task...dress/toilet himself, brush his teeth, prepare himself a meal, get into bed, turn in bed. Even lifting a cup to take a drink of juice is difficult for him. So, you can imagine how we are torn of just how much we can let him go?? We can't leave him home alone (which he hates) as he could drop something (including his cell phone) and be unable to pick it back up or even more worrisome, he could choke and noone would be there to help him cough or suction secretions from his airway. We have always had the mindset of taking this disease one day at a time and enjoying each day we are given with Ryan. But, now that his future (adulthood) is SO close, we are having to mentally prepare ourselves for it more than ever!! Please remember Ryan and US in your prayers as we face these challenges together. I believe the Lord has wonderful things ahead for Ryan!
